Our Data Sharing Policy
When you agree to take part in a research study, the information about you collected for the purposes of the research study may be provided to researchers running other research studies in this organisation and in other organisations. These organisations may be universities, NHS organisations or companies involved in research in this country or abroad. Your information will only be used by organisations and researchers to conduct research in accordance with recognised national or international good practice guidelines and in accordance with research ethics
For CLOCS, this means we can only share anonymised information collected by us (i.e, self-reported questionnaire data, clinical questionnaire and derived data) upon request which is followed by a strict approval processes and restrictions with access to data. We will not be sharing any commercial data, i.e. past purchase data from loyalty cards with anyone which will be restricted in our data processing agreements.
Where this information could identify you, the information will be held securely with strict arrangements about who can access the information. The information will only be used for the purpose of research, or if you provided consent, to contact you about future opportunities to participate in research. It will not be used to make decisions about future services available to you, such as insurance.
Where there is a risk that you can be identified your data will only be used in research that has been independently reviewed by an ethics committee.
We welcome enquires from scientists about further research questions that we can ask using our data.
We will make anonymised data available to other researchers upon request once our primary outcomes are published in academic journals with the exception of commercial data due to our data processing agreements with the supporting retailers.
However, you can also contact us to collaborate on our complete dataset with an expression of interest detailing your research question via email@example.com . Your application will be reviewed by the research team based on its scientific merit, requirements and our resources. Once approved the analyses will be conducted by a member of our research team and anonymised outputs will be produced for reports and publications.